Hooray for the Evil Side

I suppose I should talk about myself and how I am doing and blah blah. But doing that will only get me wound up into a rant, and not a fun one, so if I’m going to rant, lets rant about something far more important:  Those damnable Autobots.

If you are a Transformers fan, or inescapably linked to someone who is, you have no doubt seen the recent episode, “Rise of the Predacons.” When I viewed this episode with my housemate, I summed up the Autobots as a bunch of able-ists. When, later, my daughter also viewed the episode, her reaction also was “bunch of able-ists!”

Now, for those of you who have somehow managed to miss out on this touchstone of geek pop culture, in the Transformers universe, there are two sides which have been at war for hundreds of years. One is the Autobots, which in the current incarnation have a firm base on Earth and control of their home planet of Cybertron. They are the self-proclaimed good guys, led on Earth by Optimus Prime and on Cybertron by Sentinel Prime. Playing the part of the villains are the Decepticons, led by Megatron. The Autobots are supposedly on the side of freedom and life, while the Decepticons are into power for the sake of power.

So, if you were a permanently disabled Transformer, which side would you want to be on? I’m telling you, there’s only one side that will have you for you, and that is the Decepticons.

Look at “Rise of the Predacons.” In it, Elita One is revealed not to be dead, but instead to have been somehow combined with a spider to become Blackarachnia. As Autobots, including the two aformentioned Primes, discover that she is alive but now different, they each declare their revulsion and pity. Oh, sure, Optimus is all about wanting to cure her while Sentinel is speed-dialing Dr. Kevorkian, but the upshot is that neither one of them can envision a Transformer society in which somerobot who is part organic can be accepted and thrive. It’s kill or cure, million dollar babycakes.

Meanwhile, what is the leader of the eeeeeeeevil Decepticons doing? He’s on a road trip through space with his disloyal henchbot, Starscream. Megatron does not need to be palling around with Starscream, and if he were to get fed up with Starscream’s constant jibes and machinations, he could always easily get away from him. Why? Because, at this point, Starscream has nothing left of himself but his head. And yet, this annoying, trash-talking head is still seen as a valuable contributing member of the Decepticons, worth being toted around everywhere. Sure, he’s not fully respected, but that’s not really different than when he had a body. And when the Decepticons come across Blackarachnia? Yeah, they call her a “techno-organic freak.” But they will also offer her a job, a vital role in their organization, seeing her as valuable for her skills and knowledge. The one thing they don’t do is throw her a pity-party. 

So, here I am, feeling lately particularly vulnerable in this current economic climate as my body discovers new ways to give out on me. Which side would I prefer my own employers to emulate? Freedom-loving Autobots with their fetish for the normal or scheming Decepticons who don’t care how you do it as long as it gets done?

All hail Megatron!

So, um, happy belated Blogging Against (Dis)able-ism Day! 

My housemate vlogged about this after we discussed it. Let’s see if I can successfully embed the video!

Who are these freaks?

It’s Blogging Against Disablism day, and I actually have a post up for it!

Elizabeth of Screw Bronze! got me thinking more about how I see myself. And how, from my perspective, I’m absolutely normal. It’s everyone else who is weird. What do you mean, you don’t pick things up with your toes? You have a hard time with clothes that have back zippers and you can’t scratch your own back without a tool? When something is just a little too far away behind you, you actually move back toward it instead of subluxing your shoulder and just reaching further? How freakish! I don’t know how you can live like that.

MD and I were talking about this earlier tonight. We both find that we are surprised to learn how much most other people are built differently than we are. Last week, I learned that one of my sisters can’t pull the skin on her shin away from the bone. See, I thought everyone could, but apparently, no, I’m the odd one. MD noticed that her husband’s hands and feet aren’t nearly as creased as hers. Again, it turns out that he’s what passes for average. So that’s “normal”? Who knew? Not us.

I suppose that if I were to wake up tomorrow with a “normal” body, it would be nice to not hit the wall of pain that immobilizes me if I can’t rest. But I think it would be hard to get used to my new limitations and I’d probably end up breaking something when my body didn’t give the way I have come to expect.

We started talking, MD and me, about how our being different and our family members and friends being different than us, is no big deal. On our own, or with certain family members or friends, we aren’t disabled. Everything we need to do, we can do. We have what we need to do what we need at the pace we need. It’s only in going out into the world that we find ourselves disabled. I’ll find myself having to carry too much weight or bend over too often, and parts of me will start going numb from pain or subluxation. There will be heavy doors I cannot open, steps and ramps I cannot climb. Though most people can’t look at me and tell that I am disabled, that door, that incline, disables me. MD is tall and robust looking. She also has a large side helping of autonomic dysautonomia to go along with her serving of EDS. So, yes, she does need to sit down. Right now. In fact, she’s going to lie down for a moment. Offer her a seat, and she’ll take it. Refuse a place for her, she’s still going down.

To us, it all so unnecessary, these doors, those stairs, that lack of seating. We go to our respective homes, and the disability falls away. We are our own normal again. And we wonder, who are these freaks who design a world that disables people?

Blogging against (dis)Ableism

It’s “disablism” to the Brits, and “ableism” in the US, but in either case, it means the attitude of treating people with disabilities as fundamentally unequal. And on May 1, the Goldfish is once again leading the annual web campaign to highlight the problem.