Party Crashers

I read Chewing the Fat whenever Dave updates, which is nearly every day. His post, An Elephant Disappears, told of an incident at an airport that demonstrates an extreme of the ableist mindset. For those of us in the disability blog world, it is astounding, but ultimately believable, because we know Dave and know we can trust him, and we know ableism, both as a word and the concept behind it. We know it, and talk about it, the same as we know and talk about the social model or self-advocacy.

It is something, isn’t it, how blogs become little homes, or maybe parlors, where we expect to meet with certain visitors who know us and have a history with us, and we say things in ways that our expected visitors understand and build friendships and kinships. And then, every once in a while, a parlor gets inundated with strangers. Some are come back again as friends, most are just curious but well-meaning one-time guests, and a dread few are home invaders. I see it happen so often to Beth, and now see these party crashers at Dave’s. And I wonder about the people who go to other people’s personal blogs and act rudely. Do they act like this in real life? If so, they must spend a lot of time “thinking it over” under the custody of their local constabulary.

As someone who is more often a guest making a comment than the other way round, I too find it disorienting when I go make my visits to my friends and find all this noise going on. But not to worry. Friends stay around after the excitement has died down, pick up trash and wash dishes.

Declaration of Interdependence

The best thing about disability is that it really brings home the truth that community and individualism are intertwined. The best community is one that supports individual achievement and difference, and the best individual is one that gives back to community.

Elizabeth is a great example of that in action. Beth has repeatedly defied society’s vision of what someone in a terminal condition should be doing (i.e. looking at plants), and dared what so many of the rest of us have only dreamed. But she does it, in large part, knowing that she has supporters, people who think the world of her and her fierce determination. What she does, who she is, how could she do or be without any of us? When we cheer her, we cheer us, too. And she gives back fully. By daring to take risks, she encourages the fainter hearts among us to do what otherwise might only be a dream. Carapace (yes, I’m prejudiced here) is another person whose independence and individualism is supported by a community, and she gives back to make the community stronger. She doesn’t do it the way Elizabeth does. She does it by dint of her sunny personality. Right now, she can only work a few hours a week, due to her seizures. But because her boss tolerates her seizures, her husband and I provide transportation, and the US taxpayer covers her medical expenses, the reward is that everyone who comes to the desk when she is on duty goes away feeling better about themselves. She has a compliment for everyone, insidiously spreading good will and positivity every chance she gets. Take a look at Stephen, over in the UK. He’s the first to tell us all that his wellbeing is dependent upon a community that cares about him as an individual. From his loving wife, to his mother-in-law, to the infamous NHS, a community web exists that allows him to make his individual contribution to the greater good. Where would his kids be without him? Or the many friends and kinsmen who count on him as part of the joy in their world? I could go on, but I’d really rather people tell me about how they see this interdependence in their own lives. (Yes, that’s a plea for comments).

Where the individual wheels, the path becomes smoother for those coming behind, who are not trailblazers, and for those who are adventurous by nature to take new, fresh risks that will continue to open the path for the community. So, by supporting individualism, the community benefits by having individuals who are more able to be part of the community.

Happy Interdependence Day, everyone.

Put your oar in

I took a look at Disapedia today. It’s got that whole Web 2.0 thing happening which means, well, I’ll let webmaster Peter explain:

What makes Disapedia special? Why should anyone spend their time visiting or, more importantly, contributing to a site when there hundreds if not thousands of sites ostensibly dedicated to the same cause. The answer is control. The community controls its destiny on the website not just in name, but in actual physical control. For so long the battle for the disability community has been over the ability to gain control of their lives. Why should their communities and forums be any different?

So, just as the advent of the internet allowed the disabled community to cover the world and find individuals who shared the same struggles and joys of being disabled, the next shift in the internet, Web 2.0, has the potential to have just as big of an impact on the disabled community. In an era of collaborative efforts and such project as Wikipedia, MySpace, or Diggit, we have a chance to create a place that reflects our own desires. Many sites have tried to do it in the past, but because they were started by just an individual or a small group of people, they failed, or the project was abandoned and eventually became out of date. With a community though, there are thousands to make sure that Disapedia will always remain up to date and the best resource for disability on the internet, no matter what the subject.

I can’t say as there’s a whole lot at the site right now. But there will be if you go put in your oar.