Archive for ‘education’

August 11, 2008

Only words

Sunday, I listened to the neighborhood children playing, reminiscing about when I was so young and playing was serious work. In particular, I heard two boys talking.

“I never knew that! I am stupid!” He spit out that last word with venom.

I was shocked. How often had that child been called stupid that he so quickly offered it as an explanation?

His friend’s voice was soothing. “You know it now.”

“I am stoooooooopid!”

Now the friend was astonished. “You are stupid?”

“Oh, I am soooo stupid!”

I am stupid all the time,” the friend countered. “Stupid, stupid, stupid.”

“Stupo”

“Stupiddy”

For five minutes, they went on changing the word in singsong voices, two sweet little boys who were spending their time playing peacefully and teaching each other. But you know what neither of them did, not even once? Call the other one “stupid”. Instead, the slightly older boy went out of his way to make his friend feel better about his initial ignorance, and made himself his buddy’s equal in all ways. Together, they reclaimed the word “stupid,” taking away the sting until it was nothing, until the venom was gone and they could no longer even remember the judgment they were mocking.

It reminded me of another time, back when I was a teenager. At the local swimming pool, a little boy told me it was dangerous for him to go out of the shallow end since he was still learning to swim. I told him he was smart. His face broke out in an enormous grin and he rushed off. Five minutes later, he was tapping on my elbow with a burning question. “I’m smart?” “Yes, you are,” I reassured him. He took a breath in excitedly, like he had just been given a new bicycle, and again rushed off.

I thought then, as I thought now, what are the adults in these children’s lives teaching with their words? Why would a child be convinced he was stupid? Why would a child be surprised to be considered smart?

June 29, 2007

What will it take?

I came across two disturbing news items today. One is a of a diabetic man who was tossed off an Amtrak train in the middle of a forest by personnel who assumed he was drunk, when when he was actually suffering diabetic shock. The other is a report of a police officer who killed a suspect with cerebral palsy. At least the officer has been found guilty of negligent manslaughter and admits that he mistook the young man’s jerky motion for threatening behavior.

If only this sort of story was an anomaly instead of one the constant fears of people with disability, that disability will be mistaken for disobedience and disorder. I don’t expect everyone to know about every disability. But rather obviously, there are too many people who know essentially nothing about any disability and immediately interpret difference as danger. The result is that people get killed for spasticity, shot for being deaf, abandoned or jailed or tasered for diabetes and epilepsy, deported for developmental disability.

I don’t for a moment think that anyone feels good or justified after making such terrible errors in judgment. So wouldn’t it be a good idea to give some training to people who deal with the public? If there was at least some guarantee that an effort would be made to read medical alert bracelets, it would be a step in the right direction.

May 27, 2007

Congrats to the New Doctor

I am impressed with Kellie Lim, who was just graduated from medical school at UCLA. When I think of all the people who must have stood in her way, especially while she was getting her education, I am impressed with her ability to get things done. The biological sciences department at the institution where I work is notorious for declaring ahead of time that people with severe physical disabilities simply can’t do the lab work. I’ll be sure to pass Dr. Lim’s story on to them.

February 12, 2007

Our continuing story…

EDS activists are successfully getting their stories told in local papers. Here’s an article that even brings up the ABC debacle!

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